skip to main | skip to sidebar

Sunday, February 24, 2013

A child's struggle inspires drive for cure - CNN.com

A child's struggle inspires drive for cure - CNN.com
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 6:26 AM No comments:

Friday, February 22, 2013

Rare Disease Day, Feb. 28, 2013 Official Video

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 10:36 AM No comments:

Thursday, February 21, 2013

Bedroom tax: 420,000 disabled people will be affected, say charities - Mirror Online

Bedroom tax: 420,000 disabled people will be affected, say charities - Mirror Online
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 8:28 AM No comments:

Wednesday, February 20, 2013

Adoption of EUCERD Recommendations on European Rare Disease Reference Networks promotes access to diagnostics and care

Adoption of EUCERD Recommendations on European Rare Disease Reference Networks promotes access to diagnostics and care
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 3:51 AM No comments:

Tuesday, February 19, 2013

Logo Procrece

Logo Procrece by rarediseaseday
Logo Procrece, a photo by rarediseaseday on Flickr.

Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 8:36 AM No comments:

Sangart awaits key clinical data in 2013 | Liftstream

Sangart awaits key clinical data in 2013 | Liftstream
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 2:50 AM No comments:

Monday, February 18, 2013

Rare Disease Day 2013 Message from the European Rare Disease Organization (EURORDIS) - YouTube

Rare Disease Day 2013 Message from the European Rare Disease Organization (EURORDIS) - YouTube
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 11:14 AM No comments:

Vancouver Area Parent 2 Parent Resource Network - Rare Disease Foundation

Vancouver Area Parent 2 Parent Resource Network - Rare Disease Foundation
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 11:10 AM No comments:

Accrington twin battles incurable cardiac defect (From The Bolton News)

Accrington twin battles incurable cardiac defect (From The Bolton News)
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 10:53 AM No comments:

Liver cancer survival time tripled by virus - health - 10 February 2013 - New Scientist

Liver cancer survival time tripled by virus - health - 10 February 2013 - New Scientist
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 10:48 AM No comments:

Advocates in Muscular Dystrophy Community Press Congress for Fast Action on Muscle Disease Research and Treatment / People News / News / CheckOrphan

Advocates in Muscular Dystrophy Community Press Congress for Fast Action on Muscle Disease Research and Treatment / People News / News / CheckOrphan
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 7:07 AM No comments:

Saturday, February 16, 2013

Charity for rare diseases blasts Ulster leaders over EU consultation 'failure' - BelfastTelegraph.co.uk

Charity for rare diseases blasts Ulster leaders over EU consultation 'failure' - BelfastTelegraph.co.uk
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 9:15 AM No comments:

Wednesday, February 13, 2013

Stop The Government Taking Benefits From The Truly Disabled | causes.com

Stop The Government Taking Benefits From The Truly Disabled | causes.com
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 3:28 AM No comments:

Tuesday, February 12, 2013

My child is in pain

My child is in pain
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 7:16 AM No comments:

Heartland Man With Rare Disorder Gives Back / People News / News / CheckOrphan

Heartland Man With Rare Disorder Gives Back / People News / News / CheckOrphan
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 4:40 AM No comments:

Teen has rare heart defect, unique compassion - PostBulletin.com: Local

Teen has rare heart defect, unique compassion - PostBulletin.com: Local
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 2:10 AM No comments:

Monday, February 11, 2013

Mother campaigns to spread word about son’s rare condition / People News / News / CheckOrphan

Mother campaigns to spread word about son’s rare condition / People News / News / CheckOrphan
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 4:55 AM No comments:

Saturday, February 9, 2013

Red tape holding back clinical trials - Telegraph

Red tape holding back clinical trials - Telegraph
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 11:05 AM No comments:

Friday, February 8, 2013

http://79.170.44.152/the-cavan-tommy-hoey-trust.org.uk/page3.php

http://79.170.44.152/the-cavan-tommy-hoey-trust.org.uk/page3.php
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 11:20 AM No comments:

Thursday, February 7, 2013

Welcome to Exploring Assistive Technology

Welcome to Exploring Assistive Technology
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 4:07 AM No comments:

Switched On Communities

Switched On Communities
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 4:05 AM No comments:

David Tyzack defies rare illness to take part in Weight Loss Challenge | This is Devon

David Tyzack defies rare illness to take part in Weight Loss Challenge | This is Devon
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 1:04 AM No comments:

Wednesday, February 6, 2013

Welcome to NORD — National Organization for Rare Disorders

Welcome to NORD — National Organization for Rare Disorders
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 2:12 PM No comments:

Friday, February 1, 2013

Family Raises Support Fighting Rare Disease

Family Raises Support Fighting Rare Disease
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 9:03 AM No comments:

There is much more to poverty than addiction to drugs and alcohol | Joseph Rowntree Foundation

There is much more to poverty than addiction to drugs and alcohol | Joseph Rowntree Foundation
Posted by The Ultra Rare Disease Disorders And Disabilities Foundation at 6:04 AM No comments:
Newer Posts Older Posts Home
Subscribe to: Posts (Atom)

The Cavan Tommy Hoey Blog

Facebook Badge

Terry Hoey | Create Your Badge

Followers

Blog Archive

  • ▼  2013 (40)
    • ►  September (1)
    • ►  May (1)
    • ►  April (1)
    • ►  March (1)
    • ▼  February (25)
      • A child's struggle inspires drive for cure - CNN.com
      • Rare Disease Day, Feb. 28, 2013 Official Video
      • Bedroom tax: 420,000 disabled people will be affec...
      • Adoption of EUCERD Recommendations on European Rar...
      • Logo Procrece
      • Sangart awaits key clinical data in 2013 | Liftstream
      • Rare Disease Day 2013 Message from the European Ra...
      • Vancouver Area Parent 2 Parent Resource Network - ...
      • Accrington twin battles incurable cardiac defect (...
      • Liver cancer survival time tripled by virus - heal...
      • Advocates in Muscular Dystrophy Community Press Co...
      • Charity for rare diseases blasts Ulster leaders ov...
      • Stop The Government Taking Benefits From The Truly...
      • My child is in pain
      • Heartland Man With Rare Disorder Gives Back / Peop...
      • Teen has rare heart defect, unique compassion - Po...
      • Mother campaigns to spread word about son’s rare c...
      • Red tape holding back clinical trials - Telegraph
      • http://79.170.44.152/the-cavan-tommy-hoey-trust.or...
      • Welcome to Exploring Assistive Technology
      • Switched On Communities
      • David Tyzack defies rare illness to take part in W...
      • Welcome to NORD — National Organization for Rare D...
      • Family Raises Support Fighting Rare Disease
      • There is much more to poverty than addiction to dr...
    • ►  January (11)
  • ►  2012 (13)
    • ►  December (9)
    • ►  November (2)
    • ►  September (2)
  • ►  2011 (2)
    • ►  February (2)
  • ►  2010 (2)
    • ►  May (1)
    • ►  April (1)